DEMENTIA RESEARCH: Join an innovative program connecting people with dementia and researchers.
DEMENTIA RESEARCH: Join an innovative program connecting people with dementia and researchers. Zoran Zeremski

Volunteers needed for dementia research

THE newly launched StepUp for Dementia Research service is seeking volunteers who are willing to help shape the future and success of dementia research.

StepUp is an innovative online matching method of connecting people with dementia and researchers. It's being run University of Sydney and was developed them in partnership with the University of Exeter and University College London.

This ground-breaking approach will help deal with one of the biggest challenges for researchers; finding and keeping research participants.

The aim of the new service is critical to better outcomes for people with dementia. It will fast-track more effective and inclusive dementia research across Australia.

A volunteer's input now will greatly benefit the generations to come as authorities come to terms with dealing with this condition that is the second-highest cause of death in Australia.

StepUp will draw on characteristics such as age, location and diagnosis to match volunteers with researchers carrying out studies in dementia prevention, diagnosis, treatment, care and cure.

"The stigma around dementia means it can be hard to recruit participants, particularly those in the early stages who are likely to benefit most from our research but are often reluctant to talk about their symptoms or diagnosis," Professor Yun-Hee Jeon of the Sydney University's Faculty of Medicine and Health and Charles Perkins Centre said.

"In my own experience, I have seen trials delayed by over a year and budgets blown out due to an inability to find the right research participants. StepUp for Dementia Research is set to change this.

"Importantly, it will also empower people with dementia, their families, carers and the general public to make informed decisions and to have a voice in shaping the future of dementia research."

Whether you have dementia or not, you can register on stepupfordementiaresearch.org.au.

From there you will be connected with any studies that suit your situation. For more information, phone 1800 7837 123.


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